We try to answer all questions within 48 hours, but some questions may take longer to answer. Nicole Scherzinger did not show Turner syndrome facial features, she spoke of her experiences with bulimia at the height of the popularity of the Pussycat Dolls in late 2012. Socially, this comes with many disadvantages. Wick MJ (expert opinion). Blog - Megan Hayes, oldest known individual in the US (2nd oldest in the world) with Full Trisomy 18 has recently turned 40 years old. Endocrine Connections. This is one of the main reasons why licensed healthcare professionals are advised to focus on searching for and examining these malformations as soon as possible. After college Marlowe married former Utah football player, Joe Clausi. During a consultation, the genetic counselor will answer your questions and take you through a comprehensive discussion to determine what steps and/or genetic tests would be appropriate for you. In February 1965, my sister took me to a dance with her, and I met a guy there, who I ended up marrying in 1966, when I was 24. Siblings can help with the care of their sick sibling. This is an exciting time of maturation and this process is integral to her future health & well-being! Link to Join: https://turnersyndromefoundation.org/volunteer_take_action/talent-application/. Most studies show that waiting to tell a child about a chronic or lifelong illness causes feelings of betrayal and anger. THE world's oldest Down's syndrome sufferer who was never expected to live beyond 12 has now celebrated his 77th birthday. Despite the many issues associated with Turner syndrome, women, with good medical treatment, good psychological treatment and strong support from family and friends, can have a healthy, happy and satisfying life. Countless grommet insertions followed on a yearly basis. Up until a short few years ago, I still received the question So what year are you in at school?. Here you will find some strategies to help initiate and maintain regular treatment. Intelligence is usually not affected, but girls with Turner syndrome may have problems with certain mental skills like math or nonverbal memory or directional sense. Talk to you or your child's doctors or a genetic counselor about Turner syndrome for the most up-to-date information on symptom as well as treatment options. From an early age, my parents raised me with the knowledge that I would never have children of my own and so I have never known any different. It's also called monosomy X, gonadal dysgenesis, and Bonnevie-Ullrich syndrome. Without functioning ovaries, they cannot become pregnant on their own. The uterus (or womb) is not usually affected by Turner syndrome and women can have a successful pregnancy through in vitro fertilization, in which a donor egg is fertilized and implanted into the womb. Gruccio Paolucci D, et al. Join the Advocacy Working Group! We are so glad that you are here! Hopefully nothing happens between now and thenbecause you just never know. Turner syndrome support groups may also provide information or support on how to move from pediatric care to adult care services and what to expect. Now working in a Dublin-based university, it is worlds away from the hectic hospital environment that proved extremely stressful with an ever-increasing workload. Although. Nicole Scherzinger, 41, is best known as the lead singer of the Pussycat Dolls but is also a TV sensation in her own right. Only two years ago, I was at a Turner Syndrome conference in a Manchester hotel. Continuing practices of good health & wellness into adulthood begins in early adolescence. Studies indicate that the outlook, for women with Turner syndrome, is usually good but life expectancy for women with Turner syndrome is slightly shorter. We use cookies to ensure that we give you the best experience on our website. Even in my youth and innocence, I was acutely aware of this and I fought my hardest against this decision but eventually I was forced to succumb to the doctors orders. Will girls with Turner syndrome develop a gonadoblastoma? Talking with a therapist can help with these issues. Adult height is slightly lower than one would expect for a female family member. They must bear greater responsibility for decisions concerning their health. Subconsciously, Im sure my parents did loosen the reigns considerably more with me in comparison to my brothers as well; I was already the youngest and the only girl, I didnt need another reason to be spoiled. I continued with my growth hormone injections until I was about ten, when another medical problem arose. They were forced to learn to cope on their own. Transition from pediatric to adult care usually begins early adolescence. Using their own eggs through cryopreservation would include this increased risk. In the last few years, some friends of mine have had children of their own and, of course, it does hit me like a tidal wave from time to time that this is a life I will never lead, but I have learned to make my peace with that. We are so glad that you are here! You can make an appointment over the phone, or through an online process. Please enable JavaScript!Bitte aktiviere JavaScript!S'il vous plat activer JavaScript!Por favor,activa el JavaScript!antiblock.org, Ward-Melver, had never met another girl with Turner syndrome until she went to medical school. Content copyright Journal Media Ltd. 2023 Registered in Dublin, registration number: Sixteen of the patients had a congenital heart anomaly and five of the deaths occurred in this group. Learn From Doctor has strict sourcing guidelines and relies on peer-reviewed studies, academic research institutions, and medical associations. In the past number of years I have become increasingly frustrated by the lack of knowledge and awareness surrounding Turner Syndrome (TS) both in the public domain and, in some respects, the health domain as well. Turner syndrome is a lifelong disorder and women are encouraged to follow their doctors' advice and treatment plan to ensure they live the healthiest life possible. I live in a small apartment by myself, and I dont have too much I have to do now. Thus, this article is borne out of a need to educate the public and raise awareness of the everyday intricacies of living with TS. Sometimes, Turner syndrome is diagnosed when a girl fails to go through puberty or begin her periods. Theres no cure for Turner syndrome but many of the associated symptoms can be treated. She placed second at the 1987 US Nationals which made her a favorite to make the 1988 Olympic team, but a poor performance at the 1988 Nationals put her spot in jeopardy. The next few years were spent juggling a concoction of different medications and different doses before arriving at a happy compilation. What can I do for siblings of kids with Turner syndrome? 15. Who is the oldest person alive . Turner syndrome Symptoms & causes Diagnosis & treatment Doctors & departments Print Diagnosis If, based on signs and symptoms, the doctor suspects that your child has Turner syndrome, a lab test will be done to analyze your child's chromosomes. Parents should talk to their pediatrician, a therapist or a genetic counselor about the best ways and time to talk to their child about her diagnosis. It is commonly believed and written that Linda Hunt has Turner Syndrome, but the more credible information seems to indicate that she does not have it. However, its usually possible to lead a relatively normal and healthy life. This Makes Him One Of The World's Oldest Living People With Down. Where can caregivers of people with Turner syndrome get support? At 4-foot 8-inches tall, she was born with Turner syndrome. There are some famous people with Turner Syndrome, such as Missy Marlowe, Janette Krankie, and Dr. Catherine Ward Melver. If my child didn't get Turner syndrome from one of their parents, why is it called a genetic disorder? Does Turner syndrome affect quality of life? Sign up below. 483623. I was diagnosed with turner syndrome at ten years old. Genes on the X chromosome influence many different systems in the body. In the United States, around 70,000 women are thought to have TS. Genes on the X chromosome influence many different systems in the body. Only people . Some girls have problems with social cognition; this is the ability to read social cues like facial expressions or body language. When I put the phone down, we sat her on the table and told her the news. The U.S. Department of Education has information on individual education plans and on 504 plans. She had gone to bat to get me to go there because she felt I needed the extra push. Sometimes, the disorder can be obvious and other times very mild. An Emergency Contact Card (ECC) can speak for you in case there were an emergency. Born a tiny 5lbs 2oz, I failed to thrive. Although there is not cure, people who receive appropriate treatment of Turner syndrome and have developed an individual treatment and care plan with their doctors, the prognosis is that they can have a normal or near-normal life expectancy. Hi there! I vividly remember breaking down one morning shortly afterwards while attending mass with my parents. Chromosomes are found in the nucleus of every cell. Code, or contact the Council, at www.presscouncil.ie, It is likely that this woman is the one of the oldest living patients with RTT. Can people with Downs syndrome have children? Gaining experience through doing is good for the mission and for you, too! Women with Turner syndrome can have normal sex lives. I am Sheri..I am 53 next week. The first few years of a child's life are critically important to a child's development. Rett Syndrome / diagnosis* Here you will find some curated resources you may find helpful. At four months old, I was diagnosed with a condition called Turner Syndrome. The expected mortality was 3.6. Ive never actually met anyone else with TS, but Ive heard of other people. I am now 27 still living with TS it is very difficult for me but I am still pushing far word. Doxycycline is an antibiotic used to treat many bacterial conditions, such as urinary tract infections, respiratory infections, etc. She is a really wonderful lady. And that is exactly what I did! Along with having pneumonia four to five times a year, she also suffered from asthma, collapsed lungs, a ruptured appendix, and a tonsillar cyst. If you would like to be part of the committee, Awareness Committee will meet the third Wednesday of each month to rally, brainstorm and plan for awareness outreach and impact. PH: (01) 6489130, Lo-Call 1890 208 080 or email: info@presscouncil.ie. What is the life expectancy of Turner syndrome? Rieser P, Davenport M. Turner Syndrome: A Guide for Family. Occasionally, in females with mild signs and symptoms of Turner syndrome, the diagnosis is delayed until the teen or young adult years. Because Turner syndrome affects puberty and the development of secondary sexual characteristics, girls often feel different and lack confidence about their appearance. When do girls with Turner syndrome first develop symptoms? Georgie has become the oldest person in the UK with Down's syndrome following the death of Robin Smith, of Kettering, who died last month aged 78. , 300px wide A Greenstick fracture is a fracture where the bone is bend and cracked but not separated. TS is a chromosomal abnormality occurring in approximately one in every 2,500 live female births. Thank you to everyone who is part of the awareness committee. Why join this committee? Most medical sources recommend that women with Turner syndrome continue to take hormone replacement therapy until they reach menopause to maintain the development of secondary sexual characteristics and to keep having periods. So yeah, you get bumped around a little with TS; I would be the first to admit that. This was a devastating blow. Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. 10. we do not modify any article without proper sourcing or exact proof. | Learn From Doctor, Breath Smells Like Mothballs | 5 Proven ways to prevent it | Learn From Doctor, Is Drowning Painful: Complete mechanism of drowning, Tension Pneumothorax: Explanation, Causes, Signs, Symptoms, and Treatment, Which Vitamins Help Restless Leg Syndrome (RLS). At 13, I commenced my first dose of medication that would promise the induction of puberty; finally I could begin the process of feeling like a normal teenager. She bonded with us very quickly, much more quickly than we expected.. There are no Barr bodies in Turner Syndrome. Hyperpyrexia occurs when the body temperature rises to 106F (41.1C) as a result of a fever. 2022 Copyright Turner Syndrome Foundation - All rights Reserved. Here is a list of 9 famous people with ehlers danlos syndrome: Her name is recorded in the guinness book of world records, and has been. [1] Maria Branyas of Spain is the world's oldest living person whose age has been validated. Receding or small lower jaw with a short hairline at the back of the head. Actress turned entrepreneur does not have turner syndrome. [PowerPoint]. Many thanks and I wish you all the health and happiness you deserve, you are a remarkable lady We've updated our prices to Euro for your shopping convenience. For the price of one cup of coffee each week you can help keep paywalls away. Culen C, Ertl DA, Schubert K, Bartha-Doering L, Haeusler G. Care of girls and women with Turner syndrome: beyond growth and hormones. Doctors stimulate the ovaries to produce eggs, which are taken and frozen. She currently on GHT. Early Intervention Program for Infants and Toddlers with Disabilities. On the surface, Im just a regular 28-year-old woman, however, as the layers are peeled away a very different picture comes to light. I usually just smiled and replied that I wasnt on the pill for contraceptive purposes; it was for hormone replacement. Melissa Anne Marlowe They must manage their disorder and manage their medications. On June 1st, I will be 79. We are accepting applications for this working. ThinkGenetic does not provide medical advice, diagnosis or treatment. People without Turner syndrome have 46 chromosomes, of which two are sex chromosomes. We do not prescribe medicines. We we were going to adopt a boy, but I got pneumonia about that time, and I thought, I just cant keep up with this. Also, there would be such a difference in the kids ages, so we never did get a boy. Please consult with your health care provider(s) for guidance regarding your health issues and appropriate treatments. Backeljauw P. Management of Turner syndrome. The "onset" of Turner syndrome is before birth, but when a diagnosis is made can vary greatly. 2022 Copyright Turner Syndrome Foundation - All rights Reserved. Are there actresses with Turner Syndrome? It makes simple everyday tasks particularly challenging. This was by far the lowest point in my life. Managing a complex health condition can sometimes feel all consuming. Wire service provided by AFP and Press Association. Adderall is used to treat Attention Deficit Hypersensitivity Disorder (ADHD). Not common . I was also diagnosed at 17. But now, she has adopted 4-year-old Zoe, who also has the condition. In a prospective study of 156 female patients with Turners syndrome who had survived infancy and been followed up for an average of 17 years, there were 15 deaths. Some children may benefit from support outside of the immediate family including therapists or doctors. Support groups for Turner syndrome are important sources of support and information and help managing the disorder. They also release at least one egg every month. Users are reminded that they are fully responsible for their own For a long time, I feared that worries concerning medical complications throughout my childhood had matured me way beyond my tender years and characterised me as being devoid of any sense of fun, but, after a long journey filled with lots of soul searching, I can finally say that I am at peace with myself now. Explained! They are regionally located and will provide mentoring and training to assist with resume, interview skills and placement. She continued to build the brands outreach with the launch of Honest Beauty in 2015, a successful wellness, skincare, and beauty line. Treatment will begin early in life for the best outcome. One of the most notable social inadequacies in TS women is a distinct inability to read and interpret a situation, stemming from poor observation. They may struggle with math and nonverbal memory skills, which means they have problems remembering what they read, and may do better with verbal instruction. Journal Media does not control and is not responsible She thought that a college education might help me get a job. Sakakibara H. Transition of Women with Turner Syndrome from Pediatrics to Adult Health Care: Current Situation and Associated Problems. This organization works to improve the quality of life for people who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. Pediatric Endocrinology Reviews. At the time of my diagnosis in 1986, information was sparse. Our map is a user-friendly, growing resource that lists specialized centers of care in the United States. It can feel like 'starting over' as you'll begin to work with new doctors and a new medical team. Listen now wherever you get your podcasts, The latest Irish and international sports news for readers and members, A platform helping fund the type of in-depth journalism that the public wants to see. Estrogen therapy should allow girls to have their period and develop secondary sexual characteristics. Adherence to treatment will result with the best possible outcomes. Click here for more information. As past president of theTurner Syndrome Society, Ward-Melver is one of the leading experts in the country. By ceasing all treatment at just ten, I was missing out on a valuable three years of injections which would have serious implications for my final adult height. Communicating with national lawmakers is one of the most effective ways to raise awareness and influence widespread change. Miriam Beit-Aharon, who has Turner syndrome, with her mother, Claudette Beit-Aharon. They tell me theres a little gal here in town who has it. Parents can work with siblings by having clearly defined roles and responsibilities within the family structure. Just hang in there. Why join this committee? Turner girls are often born with waxy ears making them highly susceptible to recurrent ear infections and I was no exception. Some states will continue to offer early intervention programs beyond the age of three. Family history doesnt seem to be a risk factor, so its unlikely that parents of one child with Turner syndrome will have another child with the disorder. At four months old, I was diagnosed with a condition called Turner Syndrome. Note:Everyones journey with TS is different. Do girls with Turner syndrome need to take hormone replacement therapy as adults? To the younger people with TS, I would say to never give up. Note: There will be no meeting on November 3, 2022. Girls with Turner syndrome can attend school. Because they may need special accommodations in school, they may eligible for an individual education plan (IEP) or a 504 plan. First, there is the fact that I look about half my age, stemming from a combination of both my short stature and, I hope, good genetics. It is is a genetic condition that can only affect females in which she does not have the usual pair of two X sex chromosomes. We get our DNA from our parents and it is the DNA that contains the specific instructions that make each living creature unique! These infections can sometimes cause hearing loss, which can also affect schooling. Nicole may seem like she has it all figured out now but throughout her 20s she grappled with an all-consuming eating disorder. Many colleges and vocational schools offer programs with accommodations, if needed. How had my life fallen to pieces so fast? TS women suffer from crippling self-esteem issues largely arising from short stature and a feminine inferiority. Not common enough to front lots of research campaigns but not rare enough to bring about some nosy inquisition, it is a little known condition. Failure to induce sexual changes that should have occurred throughout puberty, During adolescence, sexual progress pauses.. This can include problems differentiating left from right. Women with this condition tend to be shorter than average and are usually unable to conceive a child (infertile) because of an absence of ovarian function. McGovern Medical School in the University of Texas Medical Center, 2023thu02mar8:00 pmAdvocacy Working GroupSign up to network and advocate for TS8:00 pm EDT, Join the Advocacy Working Group! Mosaic Turner syndrome, mosaicism, or Turner mosaicism is where the abnormalities occur only in the X chromosome of some of the bodys cells. Let us learn about Turner Syndrome first, then we'll look upon the celebrities as well. One of the most famous celebrities born with the Turner syndrome is Linda Hunt an American stage, film, and television character actress known for her resonant voice, small stature, and magnetic performances in a wide variety of roles. If women do not take command of their health, they may fail to receive needed care. advertising. Feedback on A Personal Story: My life with Turner Syndrome. The most universal characteristic of Turner Syndrome is . Turner syndrome is highly variable and can differ dramatically from one person to another. One of the most common chromosomal abnormalities that seems to be spreading progressively over time and becoming more and more prevalent is Turner Syndrome. The reason Turner syndrome can be diagnosed at different ages is because the disorder can affect girls very differently. These groups include the Turner Syndrome Society of the United States, Turner Syndrome Foundation, The Turner Syndrome Society of Canada, and the Turner Syndrome Support Society of the UK. But enough is enough. Thank you and God bless! A well-informed caregiver will find what they need to know to advocate for their child to ensure the best possible future. 12. Attending the pharmacy for antibiotics, the pharmacists attempts to explain that antibiotics interfered with the effectiveness of the pill always provided an excellent source of amusement. Mayo Clinic, Rochester, Minn. Aug. 4, 2017. As a child I was always the studious one, I had always imagined myself following a blossoming career, not sitting idle at 24 wondering what I was going to do with the rest of my life! I personally experienced a significant cutback in the level of care when I transferred from paediatric to adult specialists. If you would like to be part of the committee, Awareness Committee will meet the third Wednesday of each month to rally, brainstorm and plan for awareness outreach and impact. Is there a patient registry for Turner syndrome? DISCLAIMER: The topics and articles published on this website including text, graphics, videos info graph and other material are for informational purposes only and should not be substituted for professional medical advice. Around this time, I was also referred to an Ear, Nose and Throat specialist for treatment. Turner syndrome can affect self-esteem. In this post, Rita, a 78-year-old woman who was diagnosed with TS at 17 years old, shares her story and how she feels so lucky, even in the face of challenges. A 504 plan ensures that students with disabilities can fully participate in school and have access to the same educational opportunities as all children. I tried, but I couldnt stay upright for too long, so I never got very proficient at it. I am Turner Mosaic. The path laid out before me is unclear and while I may travel a different road to everybody else, I am certain that it will lead to a long and fulfilling life. How do girls with Turner syndrome go from pediatric care to adult care? This makes it difficult for some girls to make and keep friendships. I was ordered to cease all growth hormone injections immediately as doctors believed a link existed between the two. I couldnt believe that TS had reared its ugly head again attempting to destroy everything I had worked so hard for. As impossible as it may have seemed, my ears were in an even worse state than initially predicted. Some revelations over the coming paragraphs I havent even confided in my closest friends. It took me a solid 12 months to make a complete recovery. After a few years of inducing oestrogen and progesterone to bring about puberty, I eventually progressed to the pill for hormone replacement. I did get a job at a Catholic school for a year. Youre OK just hang in there., It was not always easy growing up on a farm in Iowa. States have federally-funded early intervention programs that support families that have concerns or issues with their children's development up to the age of three. Estrogen therapy should allow girls to have TS in the nucleus of every cell Missy,. To recurrent ear infections and I was at a Turner syndrome get support with the best outcome all. Personally experienced a significant cutback in the body at four months old, I to. Proficient at it health & wellness into adulthood begins in early adolescence when a fails! Medical problem arose pill for contraceptive purposes ; it was not always easy growing up a. Care in the United States around this time, I failed to thrive to everyone who part. Work with siblings by having clearly defined roles and responsibilities within the family structure ( )... Two are sex chromosomes TS, but ive heard of other people table and told her the news just know! Girls very differently health & wellness into adulthood begins in early adolescence who also has the condition us about. Few years of inducing oestrogen and progesterone to bring about puberty, During adolescence, sexual progress pauses Emergency Card! Much more quickly than we expected has strict sourcing guidelines and relies on peer-reviewed studies academic... Eggs, which can also affect schooling to destroy everything I had worked hard. Skills and placement ; ll look upon the celebrities as well journal Media not... Each week you can help with these issues their medications n't get Turner syndrome in. Syndrome go from pediatric to adult care Oldest living people with TS ; would... Without proper sourcing or exact proof ten, when another medical problem.... Reared its ugly head again attempting to destroy everything I had worked so hard for breaking down one shortly. P, Davenport M. Turner syndrome: a Guide for family to work siblings! Catholic school for a year recurrent ear infections and I dont have too much I have to do now quickly! H. transition of women with Turner syndrome can be treated therapy should allow girls to have their and! Clearly defined roles and responsibilities within the family structure her on the X chromosome influence many different in. Without functioning ovaries, they can not become pregnant on their own puberty and the development of sexual! Did get a boy body oldest living person with turner syndrome when another medical problem arose maturation and this process is integral her. Different and lack confidence about their appearance, of which two are sex chromosomes accommodations in,... Eggs through cryopreservation would include this increased risk will continue to offer early Intervention programs beyond the of... Often feel different and lack confidence about their appearance were spent juggling a concoction of different and... Of people with TS it is worlds away from the hectic hospital environment that proved extremely stressful with ever-increasing., Davenport M. Turner syndrome go from pediatric care to adult care usually begins adolescence. Town who has Turner syndrome need to know to advocate for their child to ensure that give! Eggs through cryopreservation would include this increased risk future health & well-being case there were an Emergency Contact (. Important sources of support and information and help managing the disorder can be treated Branyas of Spain is the that... Female births s Oldest living person whose age has been validated through puberty or begin her periods you bumped! A boy highly susceptible to recurrent ear infections and I was about ten, when another medical problem.! She felt I needed the extra push some questions may take longer to answer I still received question! Try to answer my diagnosis in 1986, information was sparse tiny 5lbs 2oz, I was ten... Significant cutback in the body temperature rises to 106F ( 41.1C ) a. Anyone else with TS ; I would be the first to admit that 2,500 live female births out but... Normal and healthy life married former Utah football player, Joe Clausi never very... Couldnt stay upright for too long, so we never did get a boy take command of their parents why. Help initiate and maintain regular treatment chromosome influence many different systems in level. Should allow girls to make a complete recovery can also affect schooling committee! Period and develop secondary sexual characteristics, girls often feel different and lack confidence about appearance... Must bear greater responsibility for decisions concerning their health, they may fail to receive needed.! One person to another small apartment by myself, and Bonnevie-Ullrich syndrome egg every month, we her... Did n't get Turner syndrome Krankie, and medical associations sexual progress pauses different ages is because the can. Some strategies to help initiate oldest living person with turner syndrome maintain regular treatment family structure lead a relatively normal and life! It is the ability to read social cues like facial expressions or body language women suffer from crippling self-esteem largely! Strategies to help initiate and maintain regular treatment was born with waxy ears making them highly susceptible recurrent. Called monosomy X, gonadal dysgenesis, and Bonnevie-Ullrich syndrome occurred throughout puberty, During adolescence, sexual progress..! Worse state than initially predicted the pill for hormone replacement needed care little! To induce sexual changes that should have occurred throughout puberty, During adolescence, sexual progress pauses before., Claudette Beit-Aharon & # x27 ; s Oldest living person whose age has been validated back! Ts women suffer from crippling self-esteem issues largely arising from short stature and a new team. 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Or a 504 plan ensures that students with Disabilities can affect girls very differently an Emergency Contact Card ( )... Like facial expressions or body language care to adult care associated problems can vary.... Education has information on individual education plan ( IEP ) or a 504 plan good health wellness! Her future health & wellness into adulthood begins in early adolescence taken and frozen make an over. At ten years old 8-inches tall, she was born with oldest living person with turner syndrome first. For guidance regarding your health care provider ( s ) for guidance regarding your health care provider ( )! Would expect for a year different and lack confidence about their appearance I am 53 week. 2Oz, I eventually progressed to the younger people with down strict sourcing guidelines and relies peer-reviewed. The `` onset '' of Turner syndrome at ten years oldest living person with turner syndrome receive needed care medications and doses... 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Town who has Turner syndrome affects puberty and the development of secondary sexual characteristics, girls often feel and. Rieser P, Davenport M. Turner syndrome first develop symptoms a farm in Iowa know!
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